So I went to the infectious disease doc on Monday, and we are trying to figure out how to keep me the most healthy since I keep getting bladder infections and UTI's over and over and it seems that from being on antibiotics for so long, it seems it has somewhat shut down my immune system.
My body has lost its ability to fight infection and my options of treatments are running out. I am on Avalox right now which is a new med and have 2 more days left. After those two days its going to get a bit scary and uncertain. I will for the first time in around a year that I am going off of antibiotics and am going to try to really boost up my system with vitamins and probiotics. Its going to be scary because at this time I will have no protection to stop infection. I am hoping that my new things I have been trying like the new speedicath compacts, new cleaning wipes and other things will make a difference and not cause me infection. Right now I have an infection that up to this point I have never had. Its created by my own body from having so many infections. It is not something I have done by my practice of cathing, but my body has done this to me itself due to so many infections.
If this trial does not work, this is where it will get scary. There is one other med they can try on me that is not an antibiotic (sorry don't have the name of it handy right now) that actually acts like a detergent to the bladder and is supposed to cleanse it and hopefully wash away bacteria. It is similar to formaldehyde which quite honestly sounds very scary to put in my body. If that does not work, then the only option I will have left is being treated with antibiotics such as gentramicin through IV which would probably mean being hospitalized for each treatment. Apparently they have ran out of medications in pill form for me, as I have become resistant or allergic to. Its really really scary to me to hear that my options are running out, and will most likely become more extreme measures to treat me.
I will find out soon enough if I can hopefully built my immune system back up some by not being on antibiotics and filling my body with vitamins and probiotics. I am hoping my body will learn to fight infection again like it used to before my surgery from January 2009. That is what really freaks me out, is that before that surgery that caused my damage, I had never had any type of UTI or bladder infection in my life, and I think I have had enough in this last almost two years to last several people a lifetime.
So please keep your fingers crossed for me that this trial off of the antibiotics works, and that the vitamins and probiotics will help my immune system get its health back that it once had before all of this madness.
I will keep updated on how the process goes.
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